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I write every day about living with bipolar disorder, also known as manic depression. I've written and published more than 1.3 million words

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Our Revels Now Are Ended

14 min read

This is a story about the stuff dreams are made of...

There's no bed like home

These our actors as I foretold you, were all spirits and are melted into air, into thin air. We are such stuff as dreams are made of and our little life is rounded with a sleep.

Apparently there are 125 identical bedrooms in the hotel where I've lived for most of the last year. There are always 5 pillows: Two soft ones, two firmer ones and a stupid little red one, which serves a purely decorative purpose. There's an ironing board, iron, hairdryer and kettle. There's a writing desk. There's a sofa. There are reading lights which shine directly into your eyes if you don't take the time to move them away from the position they're always left in by the housekeepers. There's a plug in the sink that always need to be pulled out and set aside, otherwise the water won't be able to drain away properly when you wash your hands. There are small pieces of information throughout the room that tell me that I can choose whichever pillows I find comfiest, that there's a place to charge my phone by my bed, and various things that tell me how much they [the hotel] cares about my stay. A place for everything and everything in its place.

How many IKEA beds have I owned? How many have I destroyed? How many have I slept in without mishap? How many times have I found myself discovering that IKEA mattresses are different from the standard UK sizes of double and king-size? How many times have I struggled to squeeze an IKEA mattress into a non-IKEA fitted sheet?

How many different beds have I slept in, during the past 5 years?

I can tell you everything about every kind of bed you're likely to encounter in the National Health Service. There are the beds in the crisis houses and psychiatric wards. There are the beds in ordinary hospital wards. There are the beds in intensive care and high dependency wards. I can tell you how to make yourself comfortable in places where somebody will shine a torch in your face every 15 to 30 minutes at night. I can tell you how to make yourself comfortable somewhere that your blood pressure, body temperature and blood oxygen saturation is being measured every hour. I can tell you how to make yourself comfortable when you have 5 canulas, a catheter and a massive femoral veinous catheter in your groin, which literally has taps you can just twist when you want to empty all the blood out of your body.

I can tell you everything about every kind of bed you're likely to encounter in a hostel full of homeless people. I can tell you about bed bugs and other human parasites. I can tell you about snoring. I can tell you about being in a room with 13 people in various states of drink and drug intoxication, and with the entire spectrum of mental health problems. I can tell you what it's like to realise that somebody rummaged under your pillow, stole your wallet, removed the cash, and replaced it back where they took it from, while you were asleep. I can tell you what it's like to have your bags regularly rummaged through in search of anything valuable. I can tell you what it's like to live for more than a year like that, with no fixed dormitory, no fixed bunk... to get woken up at 8am and told that you've got to move to another room, with another bunch of seemingly randomly-selected people who you'll be spending an unknown number of nights with.

After a while it gets tiresome.

Eventually, you figure out that when you sleep rough, if you're smart about it, then you can stay away from other homeless people, drunks, muggers, rapists and anybody who fancies doing pretty much whatever they want to you at 4:30am, because it's dark and nobody's around. Eventually, you figure out that you can have more consistency and control over your life if you find yourself some bushes or an overgrown back garden of an empty house to set up camp in. You get used to the noise of the dog walkers and the joggers. You get used to the noise of the commuters. You get used to the noise of the students and the tourists. You get used to the do-gooders, who will make their rounds to check on the junkies and the alcoholics, who cluster together in obvious places. You get used to the official-looking vehicles with their headlights, and the people wearing uniforms with their torches. You start to realise that they have absolutely no idea that you exist, because you are so inconspicuous and under their radar.

Then, you decide that it'd be nice to return to civilised society. You get a bit old to be sleeping rough. It seems somehow shameful, to reach a certain age and have dropped out.

So, you rent a series of dreadful places to live. Each one of those places has a dreadful bed: A bottom-of-the-range IKEA bed with a mattress which doesn't quite fit and slats which randomly fall off their supports, causing part of the bed to collapse unexpectedly; mattresses with a range of stains in varying hues indicating, shit, piss, vomit and blood... as well as perhaps some food stains.

You buy your own IKEA brand-new furniture, and you buy slightly better quality stuff. You buy the bed sheets that are the right size to fit, because you know exactly what size mattress you've bought. You buy a the right size mattress for the bed frame.

Then, you have to move.

How many times have I had to move?

Every time I move, I have to leave the bed behind, because I throw away the old terrible bed, which was unfit as anything more than set-dressing for a property that's being rented out as "furnished". Where would I store a shitty old bed? Where would I store a shitty old mattress? It would cost me more in storage costs, and the transportation costs of moving the shitty bed out and back, than it costs me to simply leave the replacement beds behind.

How many IKEA flat-packs have I assembled and how many have I destroyed?

How many times have I flopped down onto a newly assembled bed, exhausted?

How many times have I had to abandon any attempts at nest-making, because I have to choose my battles carefully?

It might sound like I'm sloppy, careless and perhaps have little respect for the expense and environmental impact of treating material possessions as so disposable. However, none of this stuff disappears. The problem is, that there's no shortage of supply of mattresses covered with blood, piss, sick and vomit stains. There's no shortage of damaged bed frames which do not sturdily support the bed's occupants.

What you have to understand is that I have to prioritise my survival, ahead of the pleasant choices that normal happy healthy stable people get to make. I don't choose to change my bed because I'm remodelling my bedroom. I'm not in the business of doing interior decoration for aesthetic purposes. I don't choose the colour of the paint on my walls. I don't choose my curtains. I've been grateful to have the comfort of a thin foam mattress, in a hostel dorm, on a bunk bed. I've been grateful if my bunk has happened to be close to a power socket so I can charge my phone. I've been grateful if my bunk has been near a window, so I can enjoy the ventilation. I've been grateful if my bunk has been away from the dorm entrance/exit, so people can enter and leave without disturbing me. I've been grateful if I'm not sharing a dorm with dickheads who get up at 5am and start noisily rummaging in their bags, or people with severe mental illness who have unpredictable outbursts just at the moment when you're falling asleep.

What you have to understand is that every different bed I sleep in is slightly different. There might be a family deciding to have an argument in the hotel corridor at 6am. There might be a central heating system where the pipes creak and clang at unusual times. There might be a car alarm that decides to go off all night long. There might be a fire alarm. There might be heavy traffic in the morning and evening commuter rush. There might be patients on a psych ward who want to watch TV at full volume at 7am. There might be patients on a psych ward who are kicking off, and having to be restrained, sedated and moved to 'safe seclusion', which is the modern version of a padded soundproof cell.

What you have to understand is that every bed I sleep in has a different 'vibe' in terms of how private it feels. Ground-floor bedrooms are strange to me, especially when the window coverings - blinds and curtains - aren't very good. Can people hear me masturbating? Can people see me sleeping? How much privacy do I really have? I've spent a substantial time in places where there are observation windows which can be opened by staff members, to check on the room occupant. I've spent a substantial amount of time in places where the furniture is heavy, indestructible and even bolted to the floor. I've spent a substantial amount of time where the windows don't open more than a few inches and have bars on them, and the mirrors are made out of plastic - places designed to be safe places for the care of vulnerable sick people.

Those places have been my home.

I'm about to get the keys to have a house that has 4 bedrooms, 3 reception rooms, 2 bathrooms, a garden and a shed. It's all for me. It's a blank canvas.

If I had the money, I'd have it painted.

If I had the money, I'd buy the furniture I wanted.

If I had the money, I'd buy rugs and lamps, and curtains and coffee tables and occasional tables, and a dining table and chairs and a breakfast bar and bookcases and wardrobes and chests-of-drawers and sideboards and cabinets and desks and organiser systems, where all my stuff could be neatly hidden out of view in little boxes - a place for everything and everything in its place.

If I had the money, I'd just grab the IKEA catalogue and order everything in the rooms, exactly like their designers have displayed them.

It won't be long now.

Soon, I'll have a buttload of money.

But. It's been a long journey, and some really shitty stuff has happened, like my kidneys failing.

So, I'm about to have my millionth billionth IKEA bed, and there's nothing new or novel about it. I've bought the most basic model, with plans to upgrade in future, when I can afford it. I will continue to live out of suitcases, in a house which could comfortably accomodate 2 adults and 4 children. In fact, when I have friends with kids visiting, my house should provide comfort for perhaps 3/4 adults and 2/3 children, plus 0/1 dogs.

Sorry for going on about it, but it's been a helluva journey.

Imagine all those homeless people I met when I was sleeping rough. Imagine all those people who I met when I was sleeping in those hostels. I was just like them: No money, drink problems, drug problems and mental health problems, along with the accompanying police problems.

Imagine all those people who've seen me have false-starts and almost-but-not-quite get my shit together. Imagine how much they want me to succeed. Imagine how many people I've got rooting for me, because it's supposed to be true: It's supposed to be true that we can drag ourselves out of the gutter to become rich and successful, if we work hard enough. If I can do it, can you imagine how pleased all the people - the lifelong friends I made - will be to see me doing well. I owe it to them to aim higher than sleeping inconspicuously in a bush. I owe it to them to be one of the success stories that we're told about, but in reality don't really seem to exist.

I'm pulling an incredibly high-risk manoeuvre, to get myself into a special place. What would be the point of all the hard work, suffering, deprivation and disappointment, if all it resulted in was a totally mediocre end result?  That's not a very inspiring story for my friends who've suffered disproportionately badly at the hands of fate. How awful it would be for those people who had next-to-nothing - like we all did - to see the golden boy smashed to smithereens and getting absolutely nowhere in life. Why bother, if there's no chance of a better life? Why bother, if there's no pot of gold at the end of the rainbow?

My actions might seem to have a hint of profligacy to them, and indeed some showmanship and insecure vulgar displays of wealth, but I assure you that if I was such a fool as to simply want to flaunt the fact that I can get rich 'quick' when I need to, I would simply purchase a highly desirable sports-car with a car loan, and rent the most extravagant city centre penthouse I could find, and then flaunt my materialistic lifestyle in Instagram, which would be most vulgar, crude and an insult to every value that a hard working person has.

You also have to remember that my self-esteem was very badly damaged by those years when I was sick, vulnerable and virtually penniless. Psychologically, I do not want to be living with daily reminders that I screwed up my life. For me to feel as though I've left that unfortunate period of my life behind me, it's important that I'm not dragging around 'baggage' which continuously reminds me of what might have been if only I hadn't gotten sick. I think it's a worthwhile investment, to spend a relatively small amount of cash on a home which makes me feel like I'm starting to live the life I always wanted; picking up my life again as if there was no interruption.

If you detect a hint of entitlement then you're probably not mistaken. It's my firmly held belief that hard work should result in commensurate rewards. It's my unshakeable opinion that those who have known suffering and deprivation should not suffer prejudice and disadvantages because of those misfortunes.

If we believe in a fair and just world, where hard work and dedication will allow anybody to achieve their dreams, then we must surely also believe that it's OK for my life to be good... perhaps even enviably good; desirable. Isn't it a good thing that my friends might look at me and say: He's done well and there are some parts of his life that I would like to have for myself. Isn't it a good thing that my friends who never quite escaped the life of sleeping rough, hostels and bedsits, can see that one of their own - a man ruined by divorce, drink, drugs, debt and mental health problems - could clean himself up and return to civilised society, and prosper?

If this piece has a boastful tone, I apologise. If this piece seems premature, given the amount of hard work that still lies ahead, you'd be right to caution me against complacency. If this piece is too much about me, and not enough about those who get left behind, abandoned by society, those criticisms are valid.

As it stands, I've lined up my ducks, but the journey hasn't even started yet. My bed is still in pieces in an IKEA warehouse, with my mattress rolled up tightly in the plastic which it will be delivered in. The task still remains outstanding for me: to assemble my bed, or else sleep on the floor, provided I manage to even get the keys to this dream home without a hitch, which I presently don't have enough money to be able to afford.

 

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